Healthcare

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Showing 16 results
Sjogren's Foundation, Inc

Provides information and support for people with Sjogren's Syndrome, a chronic disease in which white blood cells attack the moisture-producing glands. (Sjogren's is pronounced SHOW-grins.) Also provides virtual support groups. Website provides answers to frequently asked questions.

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Eligibility: No restrictions
Accessibility: Phone resource for information
Languages: English
Intake Procedure: Call, email, visit website, or write


Physicians Committee for Responsible Medicine

Provides health information about the relationship between diet and chronic diseases, with emphasis on the benefit of vegetarian diets. Website provides fact sheets which can be downloaded. Promotes preventive medicine, ethical research, and an end to animal cruelty in labs and education.

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Eligibility: No restrictions
Accessibility: Phone resource for information
Languages: English
Intake Procedure: Call, email, visit website, or write


CancerCare
Mon-Thu 9am-7pm, Fri 9am-5pm Eastern Time
Mon-Thu 9am-7pm, Fri 9am-5pm Eastern Time

Provides information and support for people with cancer. Services Include case management, educational workshops, and online support groups. Also provides limited financial assistance for cancer-related costs for those on low income.

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Eligibility: People with a diagnosis of cancer confirmed by an oncology health care provider; must be low income for the financial assistance program
Accessibility: Phone resource for information
Languages: English, Spanish
Intake Procedure: Call, email, or visit website


Medicare Rights Center

Provides assistance to older adults and people with disabilities, their friends, family, caregivers, and professionals who have questions about Medicare health plan options, rights, and benefits. Offers assistance to help resolve problems with coverage.

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Eligibility: People with disabilities and seniors age 65 and older who qualify for Medicare
Accessibility: Phone resource for information
Languages: English, Spanish
Intake Procedure: Call


myFace: Foundation for Facial Reconstruction
Mon-Fri 9am-5pm Eastern Time
Mon-Fri 9am-5pm Eastern Time

Provides information and support to people with craniofacial conditions. Offers craniofacial newborn care kits, information about surgery options and free flights and housing for out-of-town families seeking treatment in NYC. Also provides virtual, peer-led support groups; separate groups for adults, adolescents, and parents.

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Eligibility: Children and adults with craniofacial conditions and their families
Accessibility: Phone resource for information
Languages: English; materials available in Chinese, English, Spanish
Intake Procedure: Call, visit website, or write


American Cleft Palate Craniofacial Association
Mon-Fri 9am-5pm Eastern Time
Mon-Fri 9am-5pm Eastern Time

Provides information about cleft lip, cleft palate, and other craniofacial birth defects to patients, families, and professionals. Offers telephone and online support, and referrals to treatment teams. Sells teddy bears with repaired cleft lips.

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Eligibility: No restrictions
Accessibility: Phone resource for information
Languages: English, Spanish
Intake Procedure: Call or visit website


The Marfan Foundation
Mon-Fri 9am-5pm Eastern Time
Mon-Fri 9am-5pm Eastern Time

Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts community walks and events, webinars, regional symposia, and a conference.

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Eligibility: People with Marfan syndrome, Loeys-Dietz syndrome, VEDS, and other genetic aortic and vascular conditions; and their family and friends
Accessibility: Phone resource for information
Languages: English
Intake Procedure: Call or visit website


Health Insurance Marketplace
24-hours information by phone; Nov 1-Jan 15 open enrollment
24-hours information by phone; Nov 1-Jan 15 open enrollment

Provides information for individuals, families, and small business employers to shop for and enroll in affordable health insurance. Consumers can compare available private health insurance options on the basis of price, benefits and services, quality, and other factors. Also accepts complaints and hears appeals.

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Eligibility: No restrictions
Accessibility: Phone resource for information
Languages: English; other languages through phone interpreter
Intake Procedure: Call, visit website, or write to apply; must enroll annually


MitoAction

Provides information and support for people with Mitochondrial disease. Website provides answers to frequently asked questions. Hosts weekly teleconferences and support groups.

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Eligibility: No restrictions
Accessibility: Phone resource for information
Languages: English
Intake Procedure: Call or visit website


FOD Family Support Group
Daily 8am-8pm Eastern Time
Daily 8am-8pm Eastern Time

Provides information about Fatty Oxidation Disorders (FOD) which include a variety of mitochondrial metabolic deficiencies. Offers online support, email networking, and referrals to additional resources. Also provides online grief support for the loss of a child from any cause. Website provides a database of metabolic dietitians, and links to information such as working with insurance companies and emergency room staff, nutrition, and education.

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Eligibility: Children and adults with FOD, their family members, and interested professionals
Accessibility: Phone resource for information
Languages: English
Intake Procedure: Email or visit website to register