Sjogren's Foundation, Inc
Provides information and support for people with Sjogren's Syndrome, a chronic disease in which white blood cells attack the moisture-producing glands. (Sjogren's is pronounced SHOW-grins.) Also provides virtual support groups. Website provides answers to frequently asked questions.
Physicians Committee for Responsible Medicine
Provides health information about the relationship between diet and chronic diseases, with emphasis on the benefit of vegetarian diets. Website provides fact sheets which can be downloaded. Promotes preventive medicine, ethical research, and an end to animal cruelty in labs and education.
Provides information and support for people with cancer. Services Include case management, educational workshops, and online support groups. Also provides limited financial assistance for cancer-related costs for those on low income.
Medicare Rights Center
Provides assistance to older adults and people with disabilities, their friends, family, caregivers, and professionals who have questions about Medicare health plan options, rights, and benefits. Offers assistance to help resolve problems with coverage.
myFace: Foundation for Facial Reconstruction
Provides information and support to people with craniofacial conditions. Offers craniofacial newborn care kits, information about surgery options and free flights and housing for out-of-town families seeking treatment in NYC. Also provides virtual, peer-led support groups; separate groups for adults, adolescents, and parents.
American Cleft Palate-Craniofacial Association
Provides information about cleft lip, cleft palate, and other craniofacial birth defects to patients, families, and professionals. Offers telephone and online support, and referrals to treatment teams. Sells teddy bears with repaired cleft lips. Provides awards and scholarships to patients and medical professionals. Funds research.
The Marfan Foundation
Provides information and support for people with Marfan syndrome and related connective tissue disorders. Also provides phone and online support groups. Hosts an annual conference.
Health Insurance Marketplace
Provides information for individuals, families, and small business employers to shop for and enroll in affordable health insurance. Consumers can compare available private health insurance options on the basis of price, benefits and services, quality, and other factors. Also accepts complaints and hears appeals.
Provides information and support for people with Mitochondrial disease. Website provides answers to frequently asked questions. Hosts weekly teleconferences and support groups.
FOD Family Support Group
Provides information about Fatty Oxidation Disorders (FOD) which include a variety of mitochondrial metabolic deficiencies. Offers online support, email networking, and referrals to additional resources. Also provides online grief support for the loss of a child from any cause. Website provides a database of metabolic dietitians, and links to information such as working with insurance companies and emergency room staff, nutrition, and education.